Eyegaze Edge® Users
“I’ve been writing letters to the church…I wrote a short book(using Eyegaze) for my 4 yr. old grandson. I can’t wait to hear the reviews! Praise God for this wonderful technology.” (spinal cord injury.)
“I used my Eyegaze to do the internet, email, Facebook, and schoolwork. I do algebra, spelling, social studies, and English work at school and at home. When I was sick in the hospital, I told the doctors and nurses what I needed by using my Eyegaze because I couldn’t talk when I had a breathing tube. I’m using my Eyegaze to write this story about how I use my Eyegaze!” Jack, 21 has SMA
“My arms and hands were deteriorating quite rapidly meaning I couldn’t work anymore. The Eyegaze saved my software engineering job. I can control a Mac and do everything with my eye that I used to do with my hands. i can respond to email, I can program, I can control debuggers, I can surf the web, and I can hold conversations, not fast but with practice I’ll get faster. Jim, (ALS)
Liam,is one of our youngest Eyegaze users. He was able to run the system with only his eyes before the age of two. The flexibility of the Eyegaze Edge allows him to operate the system from any position. Liam has glycogen storage disorder.
Joyce lives in Quito Ecuador and uses her Spanish-language Eyegaze Edge to communicate with her friends and family, and to operate her Mac laptop. Joyce has ALS.
Jack Orchard Shortly after Jack was diagnosed with ALS he started a foundation called Extra Hands to provide caregiver assistance for families dealing with ALS. Using his Eyegaze Edge, Jack wrote a book about his foundation and his life.
Joe Martin was an early Eyegaze user. As senior Vice President of Nations Bank he participated in merger negations via email written with his Eyegaze Edge. After retiring from the bank he went on to write and publish two books.
Cassandra has user has been an Eyegaze user since she was 8 years old. Now in her mid twenties she’s owned her 3rd Eyegaze Edge. She has used her systems throughout her entire education. She has cerebral palsy.
What our users and their families say…
“..what a blessing your Eyegaze program was to Lynn (and therefore, to me and our whole family). For about nine years, this system opened up a whole new world for Lynn. She was a C1/C2 quad who could not even breathe on her own. She was dependent upon others for every aspect of her physical life. However, this system gave her COMPLETE independence in terms of communicating with people (via Facebook, e-mail and FaceTime). She was able to read books and turn her own pages. She was able to read things on the internet, listen to music when she wants to, play games, and order her own gifts for children and grandchildren all by herself. I could go on and on. Anyway i wanted to encourage you in the important work you do for those with disabilities. You are giving them a part of their life back.” Doug W.
“There are people fighting much more difficult situations than mine, especially children for whom this technology is their access to learning, to relationships, to fun, to life. The possibilities are limitless.” Joe, NC
“Thank you and everyone you work with. [My son] Jack is laying on his hospital bed right now using his eyegaze to chat with his friends on Facebook, check his email, and he just posted on his web page. The nurses and doctors are amazed watching him do all of this with a breathing tube in his throat and about 20 other assorted lines attached to various parts of his body.” Al, PA
“My son Jason is 16 years old and he has cerebral palsy. ‘Dad, I need you’ is one of the many things I hear on a daily basis that I never imagined I would hear. Today I couldn’t imagine life without this device. They have given my son a platform to stand on that can lead him to his own independence.” Scott, CA
” I can read books using kindle, listen to music, email, surf web, play games. Online I am once again my old self. Without it I would be a prisoner in my body, with it I am the same smart guy I used to be, with the exception of being paralyzed.” Curt, MI
“Love this thing. It has given me my life back on my terms. Cheers! Charlie, CA
“I can write to my older grandchildren and really enjoy getting e-mails back from them. I wrote a short book for my four-year-old grandson. Praise God for this wonderful technology. Thank You, Thank You!” Lynn, GA
“My arms and hands were deteriorating quite rapidly meaning I couldn’t work anymore. The Eyegaze saved my software engineering job. I can control a Mac and do everything with my eye that I used to do with my hands. I can respond to email, I can program, I can control debuggers, I can surf the web, and I can hold conversations.” Jim, MA
Without limit, by Marco Squaitzer in a word: ALS. Which in turn it stands for a serious degenerative disease, amyotrophic lateral sclerosis. A Marco Sguaitzer the “b*%#h” – as he called Stefano Borgonovo – is diagnosed in 2008 after an intense life through sport, so much friendship, a constant and insatiable curiosity of the world and people. A thirst for life that is not extinguished and that permeates the pages of this book, written within the past year: thoughts, memories, post on his blog, short stories and autobiographical immerse us slowly in the existence of Marco, a man who has no intention of abandoning the way of hope. Some No Limit is not in fact the story of the disease, nor is it a melancholic memory album is rather a manifesto for life, written by a skilled storyteller who speaks from his shadow, which gives us his world portraying sometimes with strong colors and sometimes subtle, in constant balance between depth and lightness.
Steven Heronemus, Using seashells as metaphors for practices that reveal and amplify life-affirming grace, Shells presents a path through life’s challenges. Mr. Heronemus, an avid musician and sailor who has battled ALS (Lou Gehrig’s Disease) for more than a decade, presents a collection of deeply spiritual and sometimes humorous meditations that educate readers about living with this fatal disease and give hope and inspiration to all who face difficult times. A portion of the proceeds from this book benefits the Les Turner ALS Foundation. www.facebook.com/shellsbook
Joe Martin, a retired bank vice president, was diagnosed with amyotrophic lateral sclerosis (ALS) in 1994 and told he had two years to live. But even with this paralyzing disability, he continues to find purpose and pleasure in his life. He has since pursued a successful writing career using his Eyegaze Edge. His first book, On Any Given Day (Published by John F. Blair), is a journal of his experience coping with ALS.
Joe Martin’s second book, Fire in the Rock (Ballantine Books), is a novel set in the south in the 1950s dealing with issues of race and human nature, also written with the Eyegaze Edge. Shortly after its publication it became a Book of the Month club alternate selection.
Jack Orchard was a successful entrepreneur before his diagnosis with Lou Gehrig’s disease in 2001 at age 34. Instead of preparing to die, he founded a pair of charities to help other patients and fund scientific research. Jack’s story is a remarkable triumph over adversity and a testament to the power of humanist ideals in action. Order your copy today! Extra Hands for ALS, the national youth service charity Jack founded will receive a part of the proceeds from each sale. His book, Extra Hands (Published by Lulu.com), is available from Amazon.com. Jack Orchard lives in St. Louis, Missouri.
Philippe Vigand (From Arcade Publishing, Inc): “On a July morning ten years ago, Philippe Vigand, a young, vigorous, handsome publishing executive, was walking to work when he heard a “gigantic explosion.” Strangely, nobody else seemed to have heard it…for the simple reason that it was in his head. For two months he lay in a coma. When he awoke, he was completely paralyzed, but his mind was intact. He was suffering from locked-in syndrome. After months of hospital care, Philippe was brought home…” Philippe and his wife Stephane live with their 3 children in Paris. Together they wrote Only the Eyes Say Yes. Philippe wrote his portion of the book using his Eyegaze Edge. The book has been translated into 11 languages with major distribution in 14 countries. For more books by Philippe please click here.
Australian Ergün Hüseyin has written his memoir, with great determination, to inspire and give hope to others living with motor neuron disease (MND), their families, and caregivers. This is a story of courage and faith and a lasting tribute to family and friendship, put down on the page for those to follow. “Losing the use of my hands, I controlled the keyboard with my eyes. I just wanted people in the same situation to see [me on TV] and obtain one of these EyeGaze machines too.”
For information on ordering, email firstname.lastname@example.org.